We didn’t think it could happen to us, and then it did.

Mere hours after Wesley was born in March 2023 he began showing signs of seizures and was whisked away to the NICU. His next weeks were spent in the NICU experiencing seizures and undergoing innumerable tests with no answer in sight.

He was 3 weeks old when our world changed forever. The genetic results had come back and we were told Wesley has an ultra-rare epileptic disorder known as WOREE Syndrome, caused by a deletion affecting the WWOX gene. We listened as the doctor explained: The WWOX gene plays a critical role in proper brain function. Without it Wesley will never talk, never walk, experience severe developmental delays, endure worsening seizures, and possibly die within the next 4 years. We were told we can work to keep him as comfortable as possible, but research is limited, and there’s no cure.

Hearing this changed everything and nothing for Jake and I. Wesley is our son, and we’re going to do everything we can to fight for him. One way we’ve decided to fight is to run a fundraiser this February, Rare Disease Month, to benefit the WWOX Foundation of America.

This is where you come in! We are creating a Krispy Kreme Digital Dozens Fundraiser to sell digital gift cards for one dozen glazed donuts. All proceeds minus expenses and fees will be donated to the WWOX Foundation of America. Digital gift cards will be emailed to you after payment is processed. Which means you could have donuts AND help fund life-saving research for Wesley and children like him. Interested?

Pricing is as follows:

$15=1 dozen
$30=2 dozen
$45=3 dozen

If you would like to donate AND receive a digital gift card please send the appropriate amount, how many dozen you would like, and your email in the notes to:

Venmo: @mewest098

Cashapp: $mew098

Can’t eat donuts, don’t live by a Krispy Kreme, or prefer a to donate directly to the fundraiser? Click the donate button at the top of the page and you’re able give generously there.

Help us turn the nevers into never agains.

Do-nut forget to join us in spreading the message! Share, like, and repost. Thank you for your support!

To learn more visit wwox.org.

PLEASE NOTE:

If using donate button no gift card will be sent. No physical gift card will be sent. Digital gift cards will be sent by email. Digital gift cards are redeemable in store for 1 dozen glazed donuts each. Valid at all Krispy Kreme locations excluding CT and Puerto Rico.

Dozens for DNA

By WWOX Foundation of America

Dozens for DNA

Make a DONUT-ion today!