Rosalie is a sweet and sassy 3 year old little girl who loves to play tea party and dress up in princess dresses.
Diagnosed with CTNNB1 Syndrome on 2nd birthday, life is challenging for Rosalie. She meets that challenge with strength and determination.
Rosalie uses a wheelchair primarily to get around. She has global developmental delay, left sided weakness, low muscle tone, insomnia, microcephaly, difficulty swallowing, difficulty with movements and speech. She is non speaking at this time. Not being able to communicate is frustrating for her.
We want the best for our sweet girl. Please help us to help her have the best, most independent life possible. Help us raise money for treatment and a cure. This helps not only Rosalie but all her dragonfly friends as well 💙💛