Dragonfly Donations

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Grayson Kramer-Leathem

Fundraiser since Feb 2025

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$3,001

52 supporters

100% of $3,000 goal

Grayson Kramer-Leathem's Story

After YEARS of searching for answers, we have finally learned that Grayson has a rare genetic syndrome called CTNNB1. After years of feeling like a square peg in a round hole, we finally feel like we have a COMMUNITY to be a part of. Sheila, Grayson, and I will be attending the CTNNB1 conference in July (Dylan will be at camp) and we are hoping you will help his journey. The money you donate goes straight to the CTNNB1 foundation. Thank you all for your love and support. What a journey💫♥️

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CTNNB1 Connect and Cure

A 501(c)(3) Public Charity

EIN 83-4541448

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