After YEARS of searching for answers, we have finally learned that Grayson has a rare genetic syndrome called CTNNB1. After years of feeling like a square peg in a round hole, we finally feel like we have a COMMUNITY to be a part of. Sheila, Grayson, and I will be attending the CTNNB1 conference in July (Dylan will be at camp) and we are hoping you will help his journey. The money you donate goes straight to the CTNNB1 foundation. Thank you all for your love and support. What a journey💫♥️
Team Members
Shreve
$39,744.20
76 Supporters
Lucy Hieb
$8,925
77 Supporters
William Reed
$9,330
53 Supporters
Caden Norbut
$6,123
57 Supporters
Abigail Seals
$3,940
35 Supporters
McKenna
$2,330
57 Supporters
Savannah
$3,330
32 Supporters
Sophia Goytia
$3,051
29 Supporters
Evelyn
$3,169
22 Supporters
Grayson
$1,995
30 Supporters
Abraham Ehlers
$4,775
11 Supporters
Mia Gibbons
$3,750
10 Supporters
Story
Lucy Hieb received a donation from Anonymous
3 days ago
$55
Declan received a $55 donation from Janet Polizois
4 days ago
Keep reaching for the stars, Declan!
$50
Abraham Ehlers received a $50 donation from Pazdras
4 days ago
$55
Chandler received a $55 donation from Becket Korson
6 days ago
Mimi is always right here for you my strong little Channy man ❤️
Chandler loved this
$250
Abraham Ehlers received a $250 donation from Schuk Law
6 days ago
We all love seeing videos and pictures of sweet Abe!
Anonymous loved this
$55
Chandler received a $55 donation from Susan Bidleman
8 days ago
Chandler loved this
$100
Chandler received a $100 donation from Pat & Bob Kilburn
10 days ago
Chandler loved this
Abraham Ehlers received a donation from Auntie Delan