Dear Friends and Family,
I hope this message finds you well. We are reaching out with a heartfelt plea for our son, Willy, who is bravely battling CTNNB1 Syndrome. This rare genetic condition brings profound challenges into his young life, affecting his neurological development and causing severe intellectual and physical disabilities. As parents, it is incredibly difficult to see him face such obstacles every day.
CTNNB1 Syndrome is a lifelong journey for Willy, impacting his ability to communicate, learn, and move independently. We are now focusing on gene therapy, a promising avenue that could significantly improve Willy's quality of life by addressing the underlying genetic causes of his condition.
To provide Willy with this life-changing treatment, we are organizing a fundraising campaign. Your generous contributions will directly go to funding gene therapy, which is crucial for his development and well-being as well as his quality of life. Please choose gene therapy from the drop down box to contribute as this is where funds are most needed.
We understand the challenges many are facing, and any support—whether big or small—will make a meaningful difference in Willy's journey. Your kindness and generosity will help alleviate the financial strain on our family and bring us closer to giving Willy the best possible chance at a brighter future.
Please consider donating or contacting us directly if you have any questions or wish to contribute in any way. Your support, prayers, and contributions mean the world to us as we navigate this difficult path with Willy.
Thank you sincerely for your unwavering love and support for Willy.
Warmest regards,
Jenny and Dave
