I want to shatter the misconception that a cancer diagnosis is an outright death sentence. For some, and hopefully for all in the future, cancer can be managed like any other chronic disease. I have a five-year prognosis for Stage IV paraganglioma, diagnosed on March 24, 2022. God willing, with the support of my medical team, the love of my family and friends, and my unwavering dedication to staying fit and strong, I will surpass five years.
In March 2022, while training for the Kona Ironman triathlon and ultramarathons, I started experiencing shortness of breath, dizziness, loss of consciousness, and facial swelling. Despite getting fitter, I could no longer ignore these worsening symptoms.
I was diagnosed with a rare cancer called mediastinal paraganglioma. It is Stage IV and has spread to my lungs and bones, extensively affecting my superior vena cava and causing superior vena cava syndrome, which led to the aforementioned symptoms. There is no surgery, no cure—only control and stability through treatment. I have received radiation, targeted therapy, and surgery for pathological fractures in my vertebrae.
I've always believed that my background in endurance sports like triathlons and ultramarathons has helped me weather the side effects of cancer treatments. With that in mind, I know that continuing to do the things I love will allow me to better manage the disease as it progresses and better handle future cancer treatments. This is why in 2023, I continued racing in road marathons, trail runs, ultramarathons, triathlons, and swim runs. This year, I participated in Olympic distance and Half Iron distance triathlons, with the main event being the Ironman World Championship in Kona in October.
In October 2023, I organized a fundraising event called JP’s Backyard Ultra in Skyline Wilderness Park in Napa, CA. My fundraising campaign for 2023 for the Fxck Cancer Foundation raised $14,000. It was a memorable event that brought together people from my different circles. It was a convergence of various communities, interwoven stories of groups bound by their love for the outdoors, and shared experiences of loss, struggle, and triumph when cancer enters our lives. My wish to give back to all who have touched me was met once again by the inherent strength and generosity of my community, making JP’s Backyard Ultra a resounding success.
Join me in JP’s Backyard Ultra and donate to the Fxck Cancer Foundation to support their Dying to Live Program.