Skip to main content

Rare Disease Innovation & Advocacy Coalition (RDIAC)

Share

Small Buissnesses Sponsorship - Fund Research for Superior Mesenteric Artery Syndrome, Sanfilippo Syndrome, and Bockenheimer Syndrome!

At RDIAC, our mission is to bring hope, resources, and answers to those living with rare diseases that are often overlooked. This campaign year, we are focusing our fundraising efforts on advancing research for three conditions that urgently need greater attention:

  • Superior Mesenteric Artery Syndrome (SMAS) – a rare and often debilitating abdominal vascular compression syndrome that causes chronic pain and severe digestive complications.

  • Sanfilippo Syndrome – a rare progressive, neurodegenerative disease in children that robs families of time and hope.

  • Bockenheimer Syndrome – an extremely rare vascular disorder that leads to painful and dangerous malformations in bones, muscles, and skin.

Because these conditions are so rare, research is drastically underfunded. Patients often face uncertainty, delayed diagnoses, and limited treatment options. By supporting this campaign, you are fueling research that can change lives and help uncover better treatments, improve quality of life, and move closer to cures.

Every dollar raised goes directly toward research initiatives dedicated to these conditions. Together, we can shine a light on rare diseases, push science forward, and give families the hope they deserve.

Join us in showing that no condition is oo rare to care about. Donate today to help us fund research, spread awareness, and change the future for those living with SMAS, Sanfilippo Syndrome, and Bockenheimer Syndrome.

Organized by Rare Disease Innovation & Advocacy Coalition (RDIAC)