On the Saturday before the Boston Marathon, I’ll be running the B.A.A. 5K to raise funds for the Rory Belle Foundation, where I’m proud to serve as Board Secretary.
This cause is incredibly personal—my brother James has NARS1, a rare genetic disorder that impacts neurological development. James will be pushed in the 5K by our mom, and I’ll be running alongside my sister, as well as Rory’s mom and brother. Rory’s mom, Rachel, has been a driving force in advancing research and resources for families affected by NARS1. If you'd like to support our mission or learn more, I’d be so grateful. Thank you!
Join The Rory Belle Foundation for our first worldwide 5k! Support our board members as they run the Boston 5k on April 19th, or gather your friends and family to run your own 5k!
We are raising critical funds for gene therapy creation - a therapeutic that can significantly improve the lives of our individuals affected by NARS1 Disorder.
Order an official 5k shirt to wear on race day here ! https://www.bonfire.com/5k-run-for-nars1-apparel/
Share your photos and videos from your own 5k by tagging #RunforNARS1.
