The National Loeys-Dietz Society was founded in 2007 by a group of families whose children were recently diagnosed with Loeys-Dietz syndrome. In 2008, the Loeys-Dietz Syndrome Foundation (LDSF) became a registered 501c(3) organization dedicated to:

encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis, and treatment of Loeys-Dietz syndrome
fostering research about Loeys-Dietz syndrome
providing a support network for individuals, parents, and families affected by Loeys-Dietz syndrome

Convoy for a Cause (501c(3) nonprofit) was founded in 2024 by four car enthusiasts, one of whom has LDS. We partner with the Loeys-Dietz Syndrome Foundation to spread awareness and raise money for the cause. 100% of donations and all proceeds from Convoy for a Cause events/merchandise are contributed to the Loeys-Dietz Syndrome Foundation.

Through this relationship, donations to Convoy for a Cause are tax-deductible. Those who donate $250 or more will receive an acknowledgement letter to substantiate their tax-deductible gift.

Join Convoy for a Cause in Supporting the Loeys-Dietz Syndrome Foundation