The Joy of Mobility 💚

Thanks to a generous donor we have a matching gift for the first $500 given!

This Giving Tuesday, we are kicking off a campaign to spread JOY. We invite you to join us in giving back to Duchenne families the gifts of freedom and quality of life!

Despite the daily hurdles they face, children with DMD possess a joyful spirit and an unmatched zest for life. Their resilience and courage make them true heroes, and they deserve our support this holiday season. Witnessing the radiant joy that lights up a DMD child's face as they regain their independence with a new wheelchair is a testament to the power of mobility. Let's join hands this holiday season to amplify the voices of our Duchenne families and spread the message of hope. Together, we can bring smiles to more boys in need and empower them to conquer every challenge they encounter.

With your donation, we can:

Provide needed mobility equipment to DMD boys in need
Provide support and resources to families affected by DMD
Improve the lives of those fighting Duchenne so they can live life to its fullest!

Here are some specific ways you can help:

Donate any amount in honor of the DMD Hero in your life!
Share a picture of your DMD Hero in the comments section!
Pay it forward. As you have been blessed along the way, now is your chance to be a blessing to another family!

Every donation, no matter how big or small, will make a difference in the lives of children with DMD.

Thank you for your generosity!

Together, we can bring our DMD heroes the Joy of Mobility!

What is Duchenne?

DMD IS SHORT FOR DUCHENNE MUSCULAR DYSTROPHY.
Duchenne is a genetic mutation that affects 1 in 3500 boys and in very rare cases it can affect girls. This mutation is specific to the X chromosome and is often passed down through the mother who is a carrier.

DMD is caused by an absence of dystrophin, a protein that helps keep muscle cells intact. Symptoms usually begin between ages 3 and 5. Without the dystrophin protein in your muscle cells, they are fragile and easily damaged.

Historically, boys with DMD usually do not live much beyond their teen years. The ability to walk is lost in the early teens and life expectancy is shortened significantly.

At this point, DMD is always fatal and causes major stress and difficulty for affected families. There is no cure or treatment available to reverse the effects of DMD. The current standard of care for boys with DMD includes regular corticosteroid treatments and basic vitamins and mineral supplementation.

There are many promising clinical trials in the works and we pray for a cure to be found soon.

So, What can we do in the mean time?

While we wait for a cure, we will work to make life enjoyable and fulfilling for DMD boys and their families. You can help us do that.

The Joy of Mobility: A Holiday Fundraiser for My DMD Hero

By My DMD Hero

The Joy of Mobility: A Holiday Fundraiser for My DMD Hero

Embracing the Season of Giving for Duchenne Families in Need