**A Celebration of Life will be held at Rock & Brews Oviedo (7131 Red Bug Lake Rd Oviedo, FL 32765) on Saturday, March 7 from 2:30 - 5:30 PM. If interested in attending, please indicate here so we can gauge headcount.**

On February 6, 2026, the world lost Kenneth Lloyd "Kenny" Peck Jr., a man who built roads, built homes, and built hope for families facing VCP disease.

Kenny was a problem-solver by nature. Whether leading major highway projects across Central Florida or helping a neighbor with a fix-it need, there was no challenge too big for him. But his greatest act of devotion was the 20 years he spent as a care partner to his wife, Patty, as she battled VCP disease - a rare genetic condition that affects muscles, bones, and the nervous system. He approached her care with the same problem-solving determination that defined his professional life, always focused on ensuring Patty had the highest quality of life possible. Those who knew them remember Kenny as the model care partner - always at her side, his commitment unwavering. When asked about the sacrifices he made, Kenny's response was simple: "I loved her." For him, it was that straightforward.

A Family's Fight

VCP disease has devastated the Peck family. Patty lived with VCP disease. Kenny's son, Nathan, has VCP disease. Kenny's sister-in-law and two brothers-in-law have also died from this disease. Because VCP disease is autosomal dominant, it affects families across generations. This reality drove Kenny's motivation and urgency to financially help the next generation of uncertain future without effective treatments.

Kenny's Legacy of Generosity

What many people never knew was that Kenny was Cure VCP Disease's largest benefactor. He believed deeply in inspiring others to join the fight, so he chose to be the organization's largest anonymous matching donor - quietly doubling the impact of every gift while encouraging others to step forward and contribute. He didn't want recognition; he wanted results. He wanted a cure for his wife, for his son, for the next generation of every family facing this devastating disease.

Kenny's son, Nathan, and daughter-in-law, Allison, co-founded Cure VCP Disease, Inc., a nonprofit patient advocacy organization dedicated to funding research, building patient registries, and accelerating the path to treatments and a cure. Kenny supported this mission with everything he had - not just financially, but with his encouragement and his unwavering belief that a cure will be found.

Continue His Fight

In lieu of flowers, the family invites you to honor Kenny's memory by joining his mission. Donations will support:

Patient travel stipends for the upcoming CReATe Consortium ALS study
Independent research funding for VCP disease studies
The VCP Family Registry connecting patients worldwide
Patient education and community support

Kenny spent his life building things that last - all that mattered to Kenny was finding a cure. We invite you to read his obituary and honor his memory by helping in our mission.

With gratitude,

The entire Peck family

Cure VCP Disease, Inc., is a patient advocacy organization dedicated to driving the development of a cure for valosin-containing protein (VCP) associated multisystem proteinopathy (MSP), also known as IBMPFD (Inclusion Body Myopathy, Early Onset Paget’s Disease of Bone and Frontotemporal Dementia). The disease is an adult-onset, hereditary, autosomal dominant disease caused by a pathogenic variant of the VCP gene on chromosome 9. It can affect any combination of a patients’ muscles, bones and brain and can cause degenerative diseases including ALS, frontotemporal dementia, Parkinson’s, and Charcot-Marie Tooth.

In Memory of Kenneth Peck Jr.

By Cure VCP Disease, Inc.

In Memory of Kenneth Peck Jr.

Honoring Kenny Peck: A Builder, Care Partner, and Champion for a Cure