PVS (Pulmonary Vein Stenosis) is a serious disease, resulting from a blockage in the blood vessels responsible for blood flow from the lungs back to the heart.

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Most children require frequent interventions including; surgery, stent placement, multiple medications, and heart caths throughout their childhood. Because few institutions have PVS programs, families often have to seek out these institutions on their own and travel (or relocate) great distances to receive the treatment. Below is an example of an early childhood treatment timeline for PVS.

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Although often life threatening, we believe that PVS is shifting from a terminal diagnosis to a chronic disease through brave families, caring doctors, and specific research.

All the funds we raise provide families of children with PVS the means and support to receive treatment in fighting this progressive disease. These funds also support research through various centers that are striving to better understand, develop, and implement life–saving treatments for PVS. Such as the CCRC, who is currently developing a national multi-center PVS registry.

Our Mission

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Thank you for your consideration in partnering with us and walking along side these families!

Read more stories of PVS families here.

PVS Warriors | Heart Month Feb 2024

$1K-a-Day to Foster Hope in Children & Families battling PVS

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