For some LCC families, getting to the right doctor is its own battle.

Leukoencephalopathy with Calcifications and Cysts (LCC), also known as Labrune Syndrome, is rare enough that most families don't have a specialist anywhere near home. Getting an accurate diagnosis, a second opinion, or access to a clinical trial often means a flight, a hotel, time off work, and a cost most families weren't budgeting for — on top of everything else a rare disease diagnosis already asks of them.

The LCC Foundation exists to close that gap.

Funding Family Travel helps cover the cost of getting families where they need to go — to specialists who understand LCC, to clinical trial and research registry visits that move the science forward, and to our family conference, where families meet others who understand exactly what they're living through.

What your gift makes possible

Trips to specialists — helping families reach the small number of doctors nationwide with real LCC/Labrune Syndrome expertise
Clinical trial and registry visits — removing the travel-cost barrier that can keep a family from participating in research that helps the whole community
Conference travel — flights, gas, and lodging so families can attend the LCC Foundation's family conference and connect with a community that gets it
Peace of mind — one less financial obstacle for a family already carrying a lot

Why it matters now

A rare disease diagnosis is isolating enough without a plane ticket standing between a family and the answers, care, or community they need. Travel support isn't a side benefit — for many LCC families, it's what makes specialist care and clinical trial participation possible at all.

Join us

Your donation — one-time or monthly — helps put a family on a plane, in a car, or at our conference table. Thank you for helping LCC families get where they need to go.

LCC Family Travel Fund