Team Halter/Davis....raising awareness of ALD/AMN! My husband John is affected with AMN (Halter) and my Daughter (Jesi Davis)has the gene! Our whole family has felt the affects of living with a Leukodystrophy.
John's younger brother died of ALD in 1978. John who is 63, was diagnosed in 1989 at the age of 31. By this time we had two beautiful children a daughter and a son.
Life continued, with many changes and adaptations to our lives. Our children are grown with families, blessed beyond measure with grandchildren. Gus our grandson, from our daughter Jesi is clear of the gene.
Jesi now experiences AMN symptoms. John has daily challenges now and our perspective on raising awareness has doubled! Having a leukodystrophy is no Joke....watching a loved one struggle to live is a heartache ….My husband says "Don't let the disease define who you are! Live life to its fullest" Never Give Up!!
Please help Team Halter/Davis raise awareness and money for this great cause!! Donate to our cause! $5, $10, $20 ......I will personally send you a Brain Pop!