Reserve your table now for fun-filled evening with friends, food, drinks and live music -- and support PURA Syndrome
Created 1 day ago
Empowering families, advancing research
Created 1 week ago
Determination, strength, and sent from above, that's what PURA kids are made of, LOVE. <3 Help Angelo and other PURA kiddos THRIVE!
Created 2 months ago
Help Celebrate Eliana's Bat-Mitzvah and support our PURA Syndrome Community!
Created 1 year ago
Help raise awareness and support our PURA Syndrome Community!
Created 3 months ago
Share our story to help raise awareness and support our PURA Syndrome Community!
Created 5 months ago
It’s Time to Kick Off Our 11th Year of Recognizing PURA Syndrome!
Created 7 months ago
Commemorating a Decade Since Discovery: Propelling Forward into the Future
