Thank you for your support of the global PURA Syndrome Foundation. We appreciate your assistance in raising funds for our mission to support and drive research, raise public awareness and connect, educate, serve, and empower families impacted by PURA Syndrome. You have made a gift that truly makes a difference. Thank you for giving and inspiring others with your generosity.

To learn more about PURA Syndrome, click here.

If you have any questions, please email president@pura-syndrome.org.

Thanks again for your generosity and for being part of our Rare Disease Day campaign.

Sincerely,

Eva Tucker & Liz Astridge

Co-Presidents
PURA Syndrome Foundation

2026 Rare Disease Day

Help raise awareness and support our PURA Syndrome Community!