You’re Invited to Make a Life-Changing Experience Possible

The Turner Syndrome Foundation invites you to be part of something deeply meaningful—our Annual Retreat for girls, women, and families living with Turner syndrome.

For those affected, life often includes complex medical challenges, emotional hurdles, and moments of isolation. Because Turner syndrome is rare, many individuals go through life without ever meeting someone who truly understands their experience.

That changes here.

A Place Where Belonging Begins

Each year, in a peaceful, nature-based setting, our community comes together for a retreat that offers more than just a break from daily life—it offers connection, understanding, and healing.

Participants:

Form meaningful, lasting friendships
Build confidence and independence
Learn essential life and health skills
Experience the powerful relief of being seen and understood

For many, this is the only time all year they are surrounded by others who share their journey.

It is often described as life-changing.

Why Your Support Matters

Families navigating Turner syndrome already face significant financial burdens—from ongoing medical care to specialized treatments. Because of this, opportunities like this retreat are often out of reach.

Your support helps ensure that no one is turned away because of cost.

When you give, you are:

Opening the door for someone to feel less alone
Creating a safe space for emotional healing
Supporting confidence, independence, and lifelong connection
Strengthening an entire community

Community Day: Where Connections Grow

As part of the retreat, Community Day brings individuals and families together in a welcoming, social environment filled with conversation, laughter, and shared understanding.

It’s a day to connect, to listen, and to simply enjoy being together.

Be Part of the Impact

Registration includes access to the full Community Day experience, including meals and activities. Scholarships are available to ensure accessibility—but they depend on the generosity of supporters like you.

You can make a difference by sponsoring this event.

Your contribution directly supports participants and helps us continue offering this experience to those who need it most.

Join Us

Whether you attend, sponsor, or share our mission, you are helping create a space where individuals with Turner syndrome can feel empowered, connected, and hopeful.

Together, we can turn a single day into a lasting impact.

We hope to see you there—and thank you for being part of this community.

Turner Syndrome affects 1 in 2,000 females. We can help.

Mission Statement:
The mission of the Turner Syndrome Foundation (TSF) is to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care of those affected by Turner syndrome. Early diagnosis and comprehensive treatments over the lifespan may lead to a brighter and healthier future for all young girls and women with Turner syndrome. TSF is a registered 501(c)(3) nonprofit organization

What Makes TSF Different?

Free Resources. Personalized Support. Dedication to Research & Education.

Our philosophy to keep life-changing resources free and accessible to patients is a key component of what sets us apart. We do not require membership dues or fees to access our resources. Everything found on our website is completely free to everyone, so you can find what you need exactly when you need it.

In fact, most of our events are free to attend as well, such as our patient education workshops. These workshops feature presentations by experienced medical professionals – and are 100% donation run. In addition to our online resources, we provide personalized one-on-one support to every individual that calls or emails our office everyday. We are proud to offer this level of support to the most vulnerable members of our community.

However, these elements only begin to scratch the surface of what makes us unique. While we understand and appreciate the importance of community events and fundraisers, we also know how much more impactful research and education initiatives will be in the long term. Our mission to “support research initiatives and facilitate education programs that increase professional awareness and enhance medical care” means that we partner with medical professionals, industry leaders, and more to form councils, publish guidelines, and support research.

Our commitment to research and education is demonstrated by the strong support of the medical community. TSF is regarded in the medical community as a leading resource for Turner Syndrome. Professionals often refer their patients to TSF because of our many enriching resources. Many medical professionals have even chosen to support us by joining the TSF Professional Membership, an initiative formed to help deliver support to the patients who need it most.

With all of this in mind, turn to the Turner Syndrome FOUNDATION. A strong foundation of free support, education, and research builds a future of hope, awareness, and care.

Turner Syndrome Annual Retreat July 2026

A calming holistic adventure in nature