We ended our deeply wanted, deeply loved pregnancy with baby Darby Joss just after 20 weeks’ gestation, after learning he never formed an airway and, if he survived, would endure a short life of suffering. Because of Darby’s brief life, I changed the direction of my career and focused on providing support and resources for other parents who have walked the agonizing and isolating path of TFMR. I honor Darby every day in my work as an academic, researcher, and clinician specializing in TFMR.
I am constantly amazed by the strength, resilience, and bravery of TFMR parents. During a time in our nation where TFMR is stigmatized and misunderstood, our community puts our hands on each other’s backs as we strive forward to share our babies’ stories and our unending love for them.
I constantly refer clients to RTZ hope. As a queer person, I especially appreciate the queer parent babyloss resources which are incredibly comprehensive and some of the only ones out there for this unique group of parents.