ION283 Safety Study

Give to support the first-ever Safety Study for Lafora disease. Change the lives of 10 patients. Change the future!

 

After years of frustration, we are overjoyed for this opportunity. A team at UT Southwestern started a Safety Study of ION283, a potential treatment, in December 2024. 

 

The first-ever study is only possible because of your generosity, though. We need to raise $1.5 million by May 2025 to...

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Organized by Chelsea's Hope Lafora Children Research Fund
501(c)(3) Public Charity · EIN 27-1008382
info@chelseashope.org