Eight years ago, my son Evan began his journey through what has become a long and challenging diagnostic odyssey. He remains undiagnosed with a demyelinating disease of the central nervous system. Despite countless doctor visits, tests, and expert opinions, the answers we seek have not yet been found. Evan is one of many patients in the Undiagnosed Disease Network (UDN), all searching for answers and navigating the complexities of the healthcare system and rare diseases.
This journey is overwhelming at times—physically, emotionally, and mentally. It can feel isolating and exhausting to search for answers while juggling daily life. For years, I dreamed of having a resource or community that could provide guidance, support, and understanding. Today, I’m honored and privileged to combine my personal experience with my professional role at the Undiagnosed Diseases Network Foundation (UDNF) to help others who are facing the same uncertainties we are.
The UDNF was created to provide patients and families the assistance, encouragement, and resources they need to continue their search for a diagnosis. Through our programs, we offer assistance to those navigating their journey, helping them find hope and community.
To honor Evan's eight-year journey and to support other families like ours, I ask you to consider donating $8 or a multiple of 8. Your contribution will uplift and provide support to individuals and families on their own diagnostic odyssey.
Together, we can make a difference and bring hope to those still waiting for answers. Every donation brings us one step closer to ending the diagnostic odyssey for all.
