Cure VCP Disease celebrates the life of Mark Dickerson, of Lockhart, TX, who passed away on November 16, 2024 after a long battle with diseases caused by the VCP gene variant. Mark attended the organization's first-ever VCP disease Patient and Care Partner Conference in 2019 in St. Louis, MO. At that conference, Mark connected with fellow patients and we are forever grateful for all the pictures Mark captured at the meeting. We were not prepared to have a photographer and Mark joyously stepped into that role! We still laugh thinking about how Mark was whizzing around in his powered wheelchair capturing all of the exciting action shots!

We also lift up Mark's loving wife and care partner Celeste as we know the challenges that she endured in caring for Mark with VCP disease. She occasionally shared with us Mark's progress and we hope that she is able to celebrate and remember the happy times in their 45 years of marriage.

The memorial service (Mark's final birthday party) will be held on December 9, 2024, at Bannockburn Church, 7100 Brodie Ln, Austin, TX at 11:00 A.M. They invite you to wear any shade of blue (his favorite color.)

In lieu of flowers, the family has asked that you please consider a donation to Cure VCP Disease.

Cure VCP Disease, Inc., founded in 2018, is a patient advocacy organization dedicated to driving the development of a cure for valosin-containing protein (VCP) associated multisystem proteinopathy (MSP), also known as IBMPFD (Inclusion Body Myopathy, Early Onset Paget’s Disease of Bone and Frontotemporal Dementia). The disease is an adult-onset, hereditary, autosomal dominant disease caused by a pathogenic variant of the VCP gene on chromosome 9. It can affect any combination of a patients’ muscles, bones and brain and can cause degenerative diseases including ALS, frontotemporal dementia, Parkinson’s, and Charcot-Marie Tooth.

In loving memory of Mark Dickerson

By Cure VCP Disease, Inc.

In loving memory of Mark Dickerson

Celebrating a life well lived