Yaya Foundation 4H Leukodystrophy Giving Tuesday Campaign

This year, help the Yaya Foundation for 4H Leukodystrophy give the gift of HOPE. 

Since 2018, Yaya Foundation has provided educational and emotional support for families impacted by 4H Leukodystrophy (4HL) and has helped accelerate research into potential therapies for this disease.

Yaya Foundation is named for co-Founder Ron Garber and June Cheng's daughter Yael, nicknamed "Yaya," who passed away at 13 months old from complications associated with 4HL. 

4HL is a rare disease; typically, symptoms include motor and coordination, difficult swallowing and feeding independently, eyesight issues, delayed or absent puberty, and atypical bone development. These symptoms worsen over time. Today, there is no cure for 4HL and no specific therapies for the disease.

Ron and June - along with other parents and families impacted by 4HL- started the Yaya Foundation so that no family has to face 4HL alone. Today, we are the only patient advocacy organization in the world focused on a cure for 4HL and helping families in their journey.

Your support goes directly to improve the lives of 4HL impacted individuals, their families, and their communities. 

Help us deliver HOPE this holiday season. 

Learn more about Yaya Foundation!