Fully fund the ION283 Safety Study

Fund treatment for Lafora disease!

Organized by Chelsea's Hope Lafora Children Research Fund

$288,496

62% of $465,000 goal

219 Supporters

2x

Rare Disease Day Match

Donate today and double your impact! The team at Chelsea's Hope is matching gifts for Rare Disease Day.

$1,000 match complete!

Team Leaderboard

1

Chelsea's Hope Board of Directors

6 members

$132,970

2

Chelsea's Hope Staff & Volunteers

6 members

$132,856

3

cel-luz

1 member

$10,295

4

Community

2 members

$3,068

5

Shakhsheer Birthday Fundraiser

1 member

$0

Team Members

Story

Share

Chelsea's Hope Lafora Children Research Fund

A 501(c)(3) Public Charity

EIN 27-1008382

Support Privacy Terms

© 2026 Givebutter, Inc. All rights reserved.

Powered by