One family’s story sparked this movement. But it’s about all of us now.

I lost my father to something we didn’t even know ran in our family.
Hereditary ATTR amyloidosis (V122I) is a potentially life-threatening genetic condition that affects the heart, nerves, and more, and it’s especially common in Black families, though many have never even heard of it.

My dad carried the gene.
His grandfather and uncle died suddenly too.
But no one connected the dots—because we didn’t know.
Six years after his diagnosis, he was gone.

Then I found out: I carry the same gene.

Even with years of experience working in healthcare and research spaces and losing my father to a hereditary condition; I still had to work through anxiety and push for testing, explain the condition to my routine doctors, and figure out the next steps mostly on my own.

That’s why I created #hATTRNextGen™.

This isn’t just my story. It’s a mission born from loss, love, and the will to protect others.

Too many families, especially in overlooked communities, are misdiagnosed or missed entirely.
Why?
Because family health history is incomplete.
Because healthcare systems responsible for routine care aren’t trained to look for it.
Because we often don’t know what to ask until it’s too late.

#hATTRNextGen™ exists to change that.
To break the silence.
To raise awareness.
To build tools that speak in the language of our families and lived experience.

And through the power of social media and culturally rooted storytelling, we can create real change.

“If you believe in something, Lizbeth,” my father used to say, “you’ve got to be willing to put your name on it, or it doesn’t mean anything.”

So, I’m putting my name on this.
And I’m inviting you to help build something families and future generations deserve.

What your donation will support:

Your gift will allow me to further this mission. Funds will go directly toward:

Creating digital and print materials that explain hereditary ATTR in relatable, accessible ways
Producing short-form videos for social media to spark awareness and early recognition
Collaborating with creatives who reflect the communities most affected
Equipping families and providers with tools that support earlier conversations and testing

I am not drawing income from this.
This is personal. This is purpose.
I’m building what my father never had. A way for people to recognize the signs, know their risk, and act in time.

💛 Suggested Giving Tiers

Every gift matters. Whether you give $10 or $1,000, your donation powers this movement.

Amount	Helps support...
$25	Educational graphics or print-ready materials
$50	A short-form video to raise awareness online
$100	Content design and production support
$250	A micro-campaign to reach at-risk families
Any amount	A ripple that becomes something greater than all of us

Why it matters:

This isn’t just a fundraiser.
It’s a firestarter.
It’s a village rising to protect its own.

Whether this story is yours or one you're just beginning to hear, your support matters.
Because one voice creates a ripple.
And a village, rising together, creates lasting change.

We can’t afford to learn too late.
With your help, we won’t have to.

Let’s fuel this fire.
Let’s honor those we’ve lost.
Let’s protect those still here.
Let’s move as a village.
If even one person can change their health journey through awareness and avoid the kind of loss my family faced- then a piece of me begins to heal.

That's my mission.

So Signed,
Erin Elizabeth "Lizbeth" Ealy Poyant
Founder, #hATTRNextGen™

Fuel the Fire: Help Launch #hATTRNextGen A Movement for Hereditary Amyloidosis

Raising Awareness for V122I Hereditary Amyloidosis in Black families across generations.