Black & White Gala: Rare Disease Day

A Night to Transform Lives and Illuminate the Path to Hope

Imagine a night where stories of resilience, love, and community shine as brightly as the evening’s lights. On February 27, 2025, Melanin Children Matter Inc. will host the Black & White Gala: Rare Disease Day, a powerful and unforgettable event designed to raise awareness and funds for children battling rare diseases like pediatric ALS.

This is more than just a gala; it is an opportunity to join a movement that is committed to breaking the silence around rare diseases in children of color. These diseases often go overlooked, leaving children and families isolated, without access to critical resources. But together, we can change that.

The night will bring together leaders in the medical field, advocates, families, and supporters from across the country who believe that every child, no matter their background, deserves a fighting chance. Attendees will hear from inspiring speakers, including Dr. Chelsey Carter, a passionate advocate for ALS research, and families who are at the forefront of this fight.

You will be introduced to Let’s Find Out: AAI (Autism Access Initiative), an innovative program that Melanin Children Matter is launching to ensure children of color receive the care and support they need when facing autism diagnoses. You’ll also learn about the organization’s mission to expand newborn screening for rare diseases like SPTLC2 and the critical role your presence and donations play in this cause.

As you enjoy a night of fine dining, entertainment, and networking, you’ll be part of something transformative—helping to fund groundbreaking research and critical programs that will uplift the lives of children and families facing unimaginable challenges. Each ticket purchased, and every donation made, directly impacts the lives of children who need it most.

So, don your black and white attire and join us for an evening that promises to bring hope, create change, and celebrate the strength of our communities. Together, we can turn rare diseases from a life sentence into a cause for hope.

Be the difference. Be the light.

February 27, 2025, 6-10 PM | Black & White Gala: Rare Disease Day