25% of $50,000 goal
Five years ago, a group of patients and their families joined together to start the fight for a cure for VCP disease. Since the disease is hereditary, families have been devastated by the condition, generation after generation. This "uncurable" disease can cause numerous fatal issues, affecting our family members' muscles, bones, and brain. Together, we are stopping the cycle and creating a path to treatments and cure. Doctors, patients, family and friends have come together to create working groups, clinical studies, and scientific tools for research. Your donations will be used to build an even stronger foundation to advance scientific discovery, including funding gene editing projects using CRISPR and launching a drug screening program. Let's build a better future for patients and their families! Thank you!
Cure VCP Disease, Inc., is a patient advocacy organization dedicated to driving the development of a cure for valosin-containing protein (VCP) associated multisystem proteinopathy (MSP), also known as IBMPFD (Inclusion Body Myopathy, Early Onset Paget’s Disease of Bone and Frontotemporal Dementia). VCP disease can affect any combination of a myopathy, Paget's disease of bone, and neurodegenerative diseases including ALS, frontotemporal dementia, Parkinson’s, and Charcot-Marie Tooth. Cure VCP Disease is a non-profit organization and your donations are tax deductible.