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VCP Connections Conference - 2023 Family Gathering

Viva Las Vegas!

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Organized by Cure VCP Disease, Inc.

Event

JUL
20

VCP Connections Conference - 2023 Family Gathering

Thursday 6:00 PM - Saturday 8:00 PM PDT

In Person

Add to Calendar 2023-07-20 18:00:00 2023-07-22 20:00:00 America/Los_Angeles VCP Connections Conference - 2023 Family Gathering We have a block of rooms reserved with roll-in shower-accessible rooms at the hotel. We have 15 available and they will be available on a first-come, first-serve basis. A link to hotel registration will be provided upon successful registration for the conference. See below for more lodging details. The D Casino & Hotel<br> 301 E Fremont St, Las Vegas, NV 89101, USA

We have a block of rooms reserved with roll-in shower-accessible rooms at the hotel. We have 15 available and they will be available on a first-come, first-serve basis. A link to hotel registration will be provided upon successful registration for the conference. See below for more lodging details.

Story

Join us in Las Vegas for an awesome time of connection!  The conference will be focused on patient engagement and interactions with other participants. The beginning of the conference will include scientific sessions, but the focus of the event is on patient and care partner topics and engagements as well as introducing new family members to the VCP community.

AGENDA: Available at https://go.curevcp.org/2023Age...

LODGING: **The room block is sold out**
Special room rates are as follows (valid through June 23, 2023):
Thursday, July 20 - $25.00
Friday, July 21 - $74.00
Saturday, July 22 - $74.00

There is an additional charge of $20.00 per person, per room night for Triple and Quadruple Occupancy

RESORT FEE & TAXES
A $29.95 per night Resort Fee plus 13% sales tax will be added to all reservations. The Resort Fee includes the following amenities:
- Free High-Speed Wi-Fi Access (Guest-Room)
- Complimentary valet and self-parking
- Complimentary access to the Fitness Room
- Complimentary local and toll-free phone calls
- Room stay includes access to Stadium Swim along with 1-hour early entry (seating sold separately)

Pictures of Accessible Rooms:

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ABOUT:
Cure VCP Disease, Inc., is a patient advocacy organization dedicated to driving the development of a cure for valosin-containing protein (VCP) associated multisystem proteinopathy (MSP), also known as IBMPFD (Inclusion Body Myopathy, Early Onset Paget’s Disease of Bone and Frontotemporal Dementia). The disease is an adult-onset, hereditary, autosomal dominant disease caused by a pathogenic variant of the VCP gene on chromosome 9. It can affect any combination of a patients’ muscles, bones and brain and can cause degenerative diseases including ALS, frontotemporal dementia, Parkinson’s, and Charcot-Marie Tooth.

This will be our third patient conference. Previous conferences were held in St. Louis in 2019 and 2022.

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Cure VCP Disease, Inc.

A 501(c)(3) Public Charity

EIN 82-4368871