APBD Manifests During the Prime of Life and Has No Treatment Options
APBD is an ultra-rare, inherited disorder of metabolism that gives no indication of its presence in infancy or childhood. But it strikes adults when they're in the prime of life -- as young as 35. At the current time, there is no FDA-approved treatment or cure.

Help Us Raise Funds to Advance APBD Research
Since our founding in 2005, we have raised and awarded over $1.8 million in pilot research grants as a Foundation and through UPenn's MDBR. These seed grants have made possible the ground-breaking drug discovery and biomarker development initiatives that are progressing today.

In spite of the challenging economic climate, we are committed to raising funds and ensuring APBD research moves forward.

We're excited to share that Dr. Ora Gordon, a Medical Geneticist, will be matching all donations we receive between June 16-30, up to $36,000.

Thank you for partnering with us,

Harriet Saxe and Anesa Kajtazovic
Co-Captains, Team APBD Tour De Friends Rally for Research

Have Questions?
Contact Anesa Kajtazovic, our Community Affairs Manager, at anesa@apbdrf.org.

Make Your Gift by Mail:
Make your check payable to "APBD Research Foundation" and note the gift is for APBD Rally for Research. Mail to:
Ms. Sharon Steinberg
Attn.: APBD Research Foundation
526 East 20th Street, #1D
New York, NY 10009

2025 APBD Tour de Friends Rally for Research

Team Members