Finding a Cure is in Our DNA

"Finding a Cure is in Our DNA" is more than our slogan—it's the shared mission that unites every person in our community—patients, families, researchers, donors—in the fight to end VCP disease. We prove this truth in every breakthrough we've achieved and every goal we pursue.

Double Your Impact This Giving Season: A generous donor who believes in our mission is matching every gift dollar-for-dollar up to $50,000. This extraordinary opportunity means your donation works twice as hard to accelerate breakthrough research. When you give $100, we receive $200. When you give $500, we receive $1,000. Every doubled dollar fuels the momentum we've built—from our global scientific collaborative to our patient registry driving discoveries.

Why Give?

Fuel Breakthrough Research: Your doubled gift advances treatment development through multiple research approaches, creating a strategic path toward therapies that could change lives
Support Patients and Families: Provide critical resources including genetic testing stipends, educational programs for healthcare professionals, and support networks that help families navigate VCP disease today
Build a Legacy of Hope: Every contribution accelerates research that could help patients maintain mobility longer, protect cognitive function, and improve quality of life for those affected by VCP

Why Your Support Matters Now: We have the scientists. We have engaged patients. We have the strategy. We need the fuel to keep this momentum going. Every gift advances research that could help VCP patients maintain mobility longer, protect cognitive function, and improve quality of life.

About Cure VCP Disease: We're a patient advocacy and research organization dedicated to developing treatments for VCP disease, a genetic condition affecting muscles, bones, and brain. Our identity—finding a cure is in our DNA—drives everything we do, from research strategy to patient support. Since 2018, we've proven that when patients and scientists unite, barriers fall and breakthroughs accelerate.

Together, we're not just hoping for a cure—we're building it.

2025 Year End Giving Campaign

By Cure VCP Disease, Inc.

2025 Year End Giving Campaign

Team Members