Be a Part of the ULF LeukoAware Team!

This September, join the ULF LeukoAware Team and help us raise critical funds to support families, advance research, and increase awareness for leukodystrophy. In just 30 days, we unite for one mission: to drive progress forward for the leukodystrophy community.

By becoming a peer-to-peer fundraiser, you’ll create your own personalized fundraising page, share your story, set a goal, and rally your network to make a difference. Every page, every share, and every donation brings us closer to a future with better treatments, stronger support systems, and ultimately, a cure.

Whether you’re honoring a loved one, sharing your own journey, or simply standing in solidarity, your voice and fundraising power matter. Join the ULF LeukoAware Team today and in 30 days, let’s make a lasting difference together.

About the United Leukodystrophy Foundation (ULF)

Located in Chicago, Illinois, the United Leukodystrophy Foundation (ULF), is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling. The ULF works to establish a communication network among families, as well as to increase public awareness and acts as an information source for health care providers by promoting and supporting research into causes, treatments, and prevention of the leukodystrophies.

Leukodystrophies comprise a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted.

Incorporated in 1982, the United Leukodystrophy Foundation is solely supported and funded by donations.

Federal Tax Identification Number/EIN: 35-1557361

2026 LeukoAware

30 Days. One Mission.