WE WALK FOR KIDS WITH CCDS

WHY THIS MATTERS

Creatine isn't just for athletes – it's essential for brain development. Children with creatine deficiencies have a genetic deficit that prevents their body from making or using creatine causing developmental delays, speech difficulties, and seizures.

The walk serves as ACD’s signature awareness and fundraising event and is a fun way to get involved.

YOUR SUPPORT POWERS ALL ACD INITIATIVES. INCLUDING:

Accelerate Proven Research - Building on over $1 million invested in research, we will expand promising research in the areas of gene therapy and drug development
Fast-track Existing Assets to Clinical Trials - Move treatment(s) to the IND submission phase
Expand Newborn Screening - Fund CTD newborn screening research

OUR VISION FOR THE FUTURE

Since 2012, ACD has led the fight against creatine deficiencies. We've already added GAMT to federal screening guidelines. With CTD, we're working toward the same milestone- and ultimately, a cure. Our vision is that one day all creatine deficiencies will be identified and treated within seven days of birth and those already living with CCDS will receive treatments to achieve their maximum potential.

💙🧡 Join us. Be part of the breakthrough. Donate today.💙🧡

The Association for Creatine Deficiencies (ACD) was established in 2012, by parents of children diagnosed with Cerebral Creatine Deficiency Syndrome (CCDS) that decided a rare disease needs a unified community to affect change for the future. The ACD Board consists of unpaid CCDS parent professionals committed to this cause.

2026 Walk for Strength

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