Step up and participate in the Second Annual Steps For CTNNB1 Syndrome 4K Walk!

CTNNB1 Syndrome is a rare neurodevelopmental disorder that affects less than 500 people worldwide. It causes global developmental delay, speech delay, motor problems and intellectual delay among many other symptoms. All proceeds of the event will go towards the first ever approved CTNNB1 Syndrome Gene Therapy clinical trial. The trial was approved in November of 2025 and the first-ever patient was treated in December of 2025. With it being only 3 months post treatment, the patient who was unable to bear weight on their legs and unable to talk is now able to walk and is starting to vocalize words and sounds! The even bigger piece of this all, is that YOU all helped us get to this point with your generosity last year. We want to extend the biggest thank you to you all and we hope you can join us again this year!

We walk so children like Mae and Lucy have the chance to. We are committed to taking steps towards a bright future!

This event is hosted by: Hometown Meats, Hometown Sweets, and Dakota County Commissioner, Joe Atkins.

Steps for CTNNB1 Syndrome 4K Walk 2026

Steps for CTNNB1 Syndrome 4K Walk 2026