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Event
Grand Opening Event
Friday at 5:30 PM EST
In Person
Bring your family and join us on Friday, November 24th for food, fun, friends, and lots of Christmas cheer at Jack's Christmas Light Spectacular Grand Opening Block Party benefitting debra of America. **Lights run nightly through the end of December**
Story
Jack’s Christmas Light Spectacular was started in 2017 by me, Jack Wheeler, at 11 years old. The light show has continued to grow over the years, now consisting of over 10,000 lights synchronized to 8 songs.
In 2021 we started partnering with debra of America to raise money to help fight Epidermolysis Bullosa (EB). If you enjoy the light show please consider showing your thanks by learning more about EB below and donating to debra by clicking donate above.
The light show runs from November 24th - December 31st 6-10 pm nightly at 4204 Garibaldi Avenue, Jacksonville, FL 32210 weather permitting.
GRAND OPENING BLOCK PARTY:
November 24th, 2023, at 5:30 pm. Lights turn on at 6. The road will be closed for viewing. Please RSVP by clicking the yellow button above.
Epidermolysis Bullosa, or EB, is a rare connective tissue disorder with many genetic and symptomatic variations. All types of EB share the major symptom of extremely fragile skin that blisters and tears from the slightest friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. There is currently no cure or treatment for EB. Pain management, wound care, and preventative bandaging are the only options available.
There are about 25,000 people living with EB in the US. It occurs in every racial and ethnic group and affects both genders equally. For a more in-depth and comprehensive understanding of EB, please also check out debra of America’s explanation by clicking here.
Because the cost of doing nothing is too great. This axiom defines debra of America's mission and directs all that we do. We are dedicated to improving the quality of life for those living with EB. To achieve our mission, we do two things in parallel: we provide free programs and services to the EB Community in the US, and fund the most innovative research directed at symptom relief and a systemic cure.
In 2019 alone, our largest program, the Wound Care Distribution Program, sent over $1 Million worth of specialized bandages. That translates to over 108,000 pieces of wound care sent to families across the US. Our research funding identified the genetic basis of EB and supports the science, which is at the forefront of gene and stem cell therapy, RNA repair, protein replacement, and inhibition of squamous cell carcinoma.
This year, we are hoping to beat last year's numbers and raise over $15,000 for debra. You can donate or get your free tickets to the grand opening by clicking "donate & tickets". To learn more about EB and what debra of America does, please visit debra.org.
