George Henry was born with a rare genetic disease called Syngap1. It’s characterized by hypotonia or generalized muscle weakness at birth, delayed milestones and seizures. Throughout his life we have relied on adaptive equipment to help him achieve different activities. We have been fortunate to have resources like PT OT and speech as well as opportunities for medications to treat his seizures. Through the syngap research fund new advances and studies are being moved forward to find a cure for his disease but also advancements in therapies and support for families!