Sprint4Syngap 2024

Theo was diagnosed with SYNGAP 1 disease about a year ago and since then we have found an amazing community of families affected by this disease, scientists working to cure it, and other people advocating for the many individuals who are fighting against this affliction daily. Theo, is a loving boy, who continues to fight through seizures, an autism diagnosis, severe speech delay and other challenges. He is eager to learn, smart as a whip, and a joy. We only wish a bit more normalcy for him and will continue to fight for him every step of the way. Part of that fight is the exciting work being done by SRF.  We are so excited about the future and ask that you help in any way you can. If you happen to be in the DC region, we will be getting together on April 27th to celebrate the Sprint for SYNGAP and hope you can join us for coffee, doughnuts, and a small play date for the kids.