Welcome to the Summit!

Your Year-Long Connection to Experts and Peers

The International CLOVES Syndrome Summit is an empowering, year-long virtual learning series designed specifically for patients and families navigating CLOVES Syndrome and other PIK3CA-Related Conditions.

This is more than a conference—it’s a sustained commitment to providing you with the best education and support available, all year long.

Our Mission: Equitable Access to Expertise

We believe that geographical distance, travel costs, and physical limitations should never prevent you from accessing critical knowledge.

Our foundational goal is to eliminate these barriers and ensure every patient and family member has equitable access to learn from the world’s leading clinicians and scientists, as well as crucial peer support, all year long.

By registering, you join a global community dedicated to continuous learning, connection, and hope.

What Your Registration Includes

1. Monthly Learning Sessions

Access to monthly, high-impact sessions designed to educate and support, featuring leading professionals in their fields. So far, the list of speakers and topics include:

CANVAS and ARDVARC projects, with Dr. Denise Adams
VAccess, a new tool to support patients with vascular anomalies, with Dr. Bryan Sisk
Anticoagulation for patients with Vascular Anomalies, with Dr. Whitney Eng
Updates and findings in PIK3CA research, with Dr. Ralitsa Madsen
Navigating mental health with a chronic illness, with mental health councilor Heather Fisher
Your rights while using FMLA and PFMLA (United States), with Triage Health
Navigating school accommodations, 504 and IEP, with Jodi St. Aubin

2. Ongoing Virtual Community Connection

Build lasting relationships with the global CLOVES community through our interactive social events:

Post-Session Social Hours will immediately follow most learning sessions with a casual Social Hour on the Gather platform.
Three Dedicated Social-Focused Sessions: Additional opportunities throughout the year designed purely for peer connection, sharing experiences, and supportive interaction.

Ready to Join?

Don't miss a single session! Register now to secure your access to this year-long virtual series.

After registration, you will receive the full event schedule and login details for all upcoming monthly sessions and social events.

Thank you to our sponsors

CLOVES Syndrome Community would like to thank those companies whose financial contributions helped make CLOVES Syndrome Summit possible:

Relay Therapeutics Novartis

Althea's Footwear SolutionsHayes Family Foundation

2026 International CLOVES Syndrome Summit

A year-long virtual learning series for patients and families, sponsored by Relay Therapeutics