30 Day Spark is back!

Last year, we launched this initiative to champion the diverse passions of our community and highlight the way CSC amplifies the patient voice in research and clinical trials. This year, we are taking that energy to the next level. Our 2026 theme is a reminder of our collective power: Together We Spark. Together We Thrive.

Together We Spark Connection: Programs like Betsy’s Camp & Retreat, CSC's annual retreat where people with CLOVES and their families connect and relax in beautiful New Hampshire has been the catalyst for lasting friendships between children with CLOVES and their caregivers for nearly ten years.
Together We Spark Awareness: Our children’s books, Four Leaf Cloves and Incredible You, have been distributed to kids, classrooms, and libraries across the country. This drives awareness of CLOVES Syndrome and helps kids with CLOVES Syndrome navigate stigma with confidence.
Together We Spark Progress: CSC collaborates with researchers and pharmaceutical partners, ensuring the patient voice is at the center of clinical trial design, including new and forthcoming trials for new treatment options.

What is the 30 Day Spark?

30 Day Spark is a "choose-your-own-adventure" fundraising campaign. For 30 days, members of the CLOVES community commit to a challenge that excites them—whether it's daily meditation, training for a 5K, finishing an art project, or learning a new skill. As they push themselves and share their progress, they also share a little about CLOVES Syndrome. Friends and family support their journey by donating to CLOVES Syndrome Community.

Why Your Spark Matters

Our goal for 2026 is to raise $20,000, a lifeline for our community's most vital programs like those listed above and more. When you donate, you fuel CSC’s mission to improve the lives of those with CLOVES Syndrome.

Together We Spark Support: Your efforts fund programs like Family Assistance Program, which helps offset the cost of CLOVES care like custom shoes and adaptive equipment for CLOVES families in our community worldwide.
Together We Spark Learning: You help us host events like the International CLOVES Syndrome Summit, a virtual learning series where top professionals educate our community on CLOVES-relevant topics like anticoagulation, navigating mental health, and more.

Together, we can make 2026 our most impactful year yet. Let’s get started!

30 Day Spark 2026

Together We Spark

Team Members