Here at CLOVES Syndrome Community, our mission is to improve the lives of those affected by CLOVES Syndrome through support, research, and education. Put another way, we strive to

🍀 Create opportunities for connection across our community,

🍀 Collaborate with scientists and industry to better understand CLOVES and develop new treatment options, and

🍀 Drive awareness of CLOVES worldwide--through campaigns like CLOVES Syndrome Awareness Day!

We envision a future where people with PROS conditions live long, full, vibrant lives, with access to excellent medical care.

We recently started a new fiscal year, and as we review all we've accomplished in the last twelve months one thing is crystal clear: We couldn't have done any of it without dedicated individuals like you, who donate, volunteer, and lend us your expertise.

“Finding the CLOVES Community changed my life completely. I grew up never seeing anyone like me, not even a bit. Now I feel so seen and represented by all the different people we see here on the community. All I have to say is thank you, with all my heart!”

-Gabi

Here's a snapshot of what we've accomplished in the last twelve months, thanks to donors like you:

Canva custom creation

And there's more to come! If this organization has helped you or a loved one, please consider donating today so we can continue this important work. We would be so grateful for your support.

"We are so thankful for the CLOVES syndrome Community that helped us navigate through this very hard time. Being able to reach out and talk to other parents was one of the most helpful things. We didn't feel alone anymore!"

-Melinda

Annual CLOVES Syndrome Awareness Campaign

By Cloves Syndrome Community

Annual CLOVES Syndrome Awareness Campaign