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Established in 1993, CVSA has grown from a handful of interested parents and professionals into a network that includes over 40 medical advisors and volunteers serving in the U.S. and Canada, as well as over 30 other countries worldwide.

As an association, we have two primary objectives: to work toward a cure by supporting several promising research initiatives and to assist those impacted by CVS by strengthening communications and offering a wide range of resources for their education and support.

International CVS Awareness Day 2024

#LightUpCVSAwareness