2025 CdLS Foundation Year End Appeal

Every so often, a parent says something that reminds us why we do this work. Because of you, families find comfort, connection, and hope when they need it most. Your support keeps our helplines open, brings families together, and drives research that changes lives.

This year, researchers from around the world met to advance CdLS studies, families received expert care at Clinics, and parents found strength in support groups. That’s the power of you. Your year-end gift ensures the next family who calls hears, “We’re here for you.” Together, we’re building a future where no one faces CdLS alone.