Rett syndrome is a serious, lifelong neurological disorder. Imagine the symptoms of autism, cerebral palsy, Parkinson’s disease, epilepsy, and anxiety disorder… all in one little child.

The symptoms are diagnosed primarily in girls and typically appear in toddlerhood. Many children with Rett cannot speak, walk, or use their hands. Breathing problems, feeding tubes, seizures, anxiety, and gastrointestinal and orthopedic issues are very common.

Despite the debilitating nature of Rett, our children are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

🧬 The Genetic Medicine Revolution:

Rare diseases will NOT cure themselves. De-risking the research and development of cutting-edge technologies falls on patient advocacy groups and nonprofits (like us). We HAVE to feed the genetic medicine pipeline by working with biopharma companies to help clear a path toward clinical trials and the production of cures.

Striking while the iron is hot is crucial to our success; there has never been more urgency. Advances in genetic medicines are happening at lightning speed, and Rett could be positioned to benefit significantly from that momentum. We want to be at the front of the line.

This is why we started the Roadmap to Cures 2.0 initiative. Click here to learn more.

🌊 Your Impact:

The unwavering dedication and perseverance of the Rett community, combined with the love we have for our children, empower us to fulfill our vision of a world where genetic medicine cures are no longer science fiction but a reality.

💥 How You Can Help:

1️⃣ Donate to this campaign!

2️⃣ Create your own Page in seconds:

3️⃣ Share with your Community!

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Check back here often for updates!

Everything helps: Every single penny. Every single share. It all adds up. It all makes a difference.

NOTE: Contact Tim to discuss larger donations, donating via check, stock, or cryptocurrency, organizing a fundraiser, company matching, corporate sponsorship, or any other form of fundraising.

Crowdfunding for Rett Cures

By Rett Syndrome Research Trust

Crowdfunding for Rett Cures

Help RSRT raise $40 Million, to get 3 Genetic Medicines in Clinical Trial by 2028.

Team Members