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End The Legacy Giving Tuesday
Our small organization, which has an oversized impact, is so overwhelmed that two generous supporters have agreed to stake out a matching gift challenge for our supporters this giving season.
For every dollar you contribute, they will match it 2 for 1. If we meet our goal of $25,000 raised through this appeal, our movement will receive $75,000 dollars when their match is added. The Barvin Family Foundation in honor of our leader and co-founder Daniel Barvin’s Activism and the Fund to Eradicate ALS have combined to offer this possible $50,000 match.
This independent resource will help ensure our work educating, supporting, and advocating for our community of those impacted by inherited or genetic ALS and FTD continues and grows.
We never charge for community access to our resources, and we want to keep it that way.
Stay tuned for the first-ever guidance for those at risk of genetic ALS and FTD and our full court press to ensure all families impacted know about it.
Dr Stephanie Fradette of Biogen: "When we look at groups like End the Legacy - the impact that that group has had on the field in such a short time is remarkable. Really, having such an instrumental voice in making sure that all of us are considering the at-risk community, not assuming we know what the at-risk community wants or needs, but hearing from them directly has been instrumental."
The Weisberg Family Foundation in honor of our leader and co-founder Daniel Barvin’s Activism and the Fund to Eradicate ALS have combined to offer this possible $50,000 match.
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Organized by ALS Hope Foundation
501(c)(3) Public Charity · EIN 23-3010389
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