Thank you for supporting the SCN8A community. By supporting teams raising funds for the International SCN8A Alliance, you are providing hope for improved care and treatments and a better future for those living with SCN8A and their families.

The International SCN8A Alliance is:

The leading global SCN8A patient advocacy group actively collaborating with clinicians, researchers, patient groups, industry and families across the globe to coordinate efforts and actively partner to advance improved care and treatments for those with SCN8A.
A full service organization bridging the divide and breaking down silos between families, researchers, clinicians and industry.
Providing weekly opportunities for families to speak with the geneticist who discovered SCN8A to discuss challenges for those living with SCN8A and learn from our global Registry.
Innovating, based on caregiver and clinician feedback, to bring the 1st global consensus on Diagnosis and Treatment Guidelines for those with SCN8A and their families working with 30 pediatric epileptologists from 15 countries and 5 continents.
Advancing innovative efforts to partner with global SCN8A organizations, researchers, clinicians and broader epilepsy & leadership groups to eliminate overlap and coordinate efforts to get us closer to a cure, faster.

Egg Head Challenge for SCN8A

Join this challenge to help us raise funds to improve care and treatments for those with SCN8A.

Team Members