Thank you so much for registering for the LCC/Labrune Syndrome Global Family & Research Conference! We’re thrilled that you’ll be joining our community of families, researchers, and advocates coming together from around the world to connect, learn, and advance hope for everyone affected by LCC.

Your participation helps strengthen our shared mission—to drive understanding, collaboration, and progress toward better care and treatments for LCC/Labrune Syndrome.

We’ll be in touch soon with more details about the conference agenda, travel information, and opportunities to get involved.

Here is the link to book your hotel through our room block at the Sheraton Westport Plaza Hotel:

https://www.marriott.com/event-reservations/reservation-link.mi?id=1765831525082&key=GRP&app=resvlink&_branch_match_id=1298341779958053374&_branch_referrer=H4sIAAAAAAAAA8soKSkottLXTywo0MtNLCrKzC8p0UvOz9UvSi3OyczLtgdK2ALZZSCOWmaKraG5mamFsaGpkamBhZFadmqlrXtQgFpdUWpaKlB3Xnp8UlF%2BeXFqka1rSnoqAGFeOXReAAAA

Global LCC Family & Research Conference

Join us for our Inaugural Global LCC Conference!