Giving for ZTTK

Supporting ZTTK Research

$340,555

462 Supporters

68% of $500,000 goal

Jemma Howard

Fundraiser since Jul 2024

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Jemma Howard's Story

I’m fundraising in support of all the ZTTK children and adults that have been affected by this RARE syndrome, especially my daughter Ava Cochrane. Ava is my life. She enriches everything in it. She smiles through everything. Whether that’s us talking to her or she’s getting blood tests and operations… she still smiles. She’s a breath of fresh air. Nothing phases her. Unfortunately this disease is so RARE nobody really understands it. The life expectancy is shortened. The prognosis is unknown. We fight everyday for her to keep smiling. But she needs help. Your help. Research, studies and other tests are important resources to help understand ZTTK. We need funding to help develop more understanding of this syndrome. Dr. Ahn, a specialist genesis, dedicats her time to support and research ZTTK in her lab work. The funding will go towards the research and testing to help prevent issues associated with ZTTK, and may even find a cure or reason why the syndrome exists. Please help us raise money for our researchers, for the families and friends affected by this unfortunate syndrome. ❤️

Story

$340,555

462 Supporters

68% of $500,000 goal

$55

Mickaël received a $55 donation from Gérard GRATALOUP

about 1 month ago

J'espère contribuer un peu à la recherche pour améliorer le quotidien de tous les patients ZTTK
$500

Ada Lio received a $500 donation from Anonymous

about 1 month ago

Go Lukie!
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Cyrille made a $66 donation

about 1 month ago

Prions 😇
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Together ... we can do Everything!
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Mickaël received a donation from Anonymous

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Ada Lio received a $100,000 donation from Anonymous

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Ada Lio received a $2,400 donation from Lukie's fam

about 1 month ago

Go Lukie!
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Zttk Son-Shine Foundation Inc logo

Zttk Son-Shine Foundation Inc

A 501(c)(3) Public Charity

EIN 86-1926609

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