HELP BUILD OUR FAMILY SUPPORT PROGRAMS: BECOME A KCNT1 HERO OF HOPE TODAY!

Seizures can begin as soon as the baby is born. All due to one error in one gene. The KCNT1 gene.

Children diagnosed with this rare pediatric epilepsy face a challenging journey. Exisiting treatments don't stop the debilitating seizures.

There is no parenting handbook for this.

But YOU can help these families raise their children and give them a better life by becoming a KCNT1 Hero of Hope.

Help us get to 100 donations today to build our Family Support Programs. This includes educational webinars, conferences, toolkits and more.

You can become one of our HEROES of HOPE by supporting us on Giving Tuesday.

The KCNT1 Epilepsy Foundation is a family run organization of people dedicated to finding treatments (and hopefully a cure) for KCNT1 related epilepsy and neurodevelopmental impairments. We aim to locate every patient and researcher in the world and bring them together in a collaborative manner to make a difference for the KCNT1 community!

Gratitude for KCNT1 Heroes on GT 2023

Help Build Our Family Support Programs

Team Members