Help my voice be heard.

GATC is partnering with the FDA to help amplify patient voices. As an approved partner in the FDA's Patient and Caregiver Connection Program, the Global Adrenal Testing Consortium brings the experience of people living with adrenal insufficiency straight to the people who review new devices for our community.

Now we need the proof to bring with us.

People with adrenal insufficiency take steroids every day to stay alive, and we dose blind. There is no home test for cortisol. No way to know, on a hard day, whether the dose is too much, too little, or right. And cortisol testing is only part of what is coming. New monitors, patches, pumps, and emergency treatment devices are being built for this community right now. They should be shaped by the people who will trust their lives to them. The research that makes that possible starts with real world evidence: what living this way actually does to our bodies, our families, and our lives, gathered the right way so the FDA can use it.

That is what your gift funds. Real world evidence and health economics research, built from real patients, carried into the room where decisions get made.

GATC is patient led and run by a very small team, so this campaign also supports the basic operations that carry the work: staff time to run patient surveys, the tools that hold the data, and getting the findings in front of the FDA. We keep it lean. The people doing this work are patients and caregivers ourselves.

The most helpful gift is a monthly one. This work does not end with one study or one meeting. The surveys keep coming, the data keeps growing, and the FDA keeps listening only if we keep showing up. Ten dollars a month makes you a Voice Keeper, one of the people this work can count on every single month.

Our goal is $25,000, and here is how we get there: patients post their photo, share this page, and ask their own people to give. If 250 patients raise $100 each from their own circles, we are there. The full evidence initiative is a $180,000 effort. This campaign is the part of it that patients and families carry ourselves. Give any amount and you are one of the voices. Then add your photo to our frame and post it, so your face goes with your voice.

This campaign began years ago with a mom, a photo of her son, and a handmade button that said his voice deserved to be heard. This time, the face on the button is yours.

Suggested amounts
$10 a month: Voice Keeper
$25: Add my voice
$50: Help carry this further
$100: Voice Champion

Help My Voice Be Heard

GATC partners with the FDA to amplify patient voices. As an approved FDA Patient and Caregiver Connection Program partner, we bring experience of people living with adrenal insufficiency to device reviewers. Now we need the proof to bring with us.