Blayne’s Story

Blayne Nash is not just another statistic. She is a daughter, a sister, and a light in the lives of everyone who knows her. Diagnosed with MPS1 Hurler Syndrome, a progressive disorder that affects multiple organs and causes severe developmental delays, her journey has been full of surgeries, therapies, and medical challenges.

Despite the pain, Blayne remains resilient. But without a cure, MPS1 will continue to steal time from her childhood. Every day matters in her fight against this disease.

What is MPS1 Hurler Syndrome?

MPS1 Hurler Syndrome is a rare genetic disorder caused by the body’s inability to break down specific sugar molecules, leading to buildup in organs and tissues. It causes severe physical and neurological symptoms, affecting a child’s ability to grow and develop properly. The impact is devastating, and without proper treatment, the disease progresses rapidly.

But there is hope. With continued research and treatment advancements, we are moving closer to a cure every day. Your support will help accelerate this process and provide families like Blayne's with the resources they need to give their children the best possible care.

We Need Your Help Now!

This is a cry for help. MPS1 Hurler Syndrome is relentless, but so is the fight for a cure. With your donation, we can fund groundbreaking research, provide critical medical care, and give families like Blayne’s the support they desperately need.

Donate today and be part of the solution. Every dollar makes a difference. Help us raise $1,000,000.00 for The Kennedy Ladd Foundation to fund life-saving research and give hope to children like Blayne.

How You Can Help:

Donate Now: Every donation counts. Click [here] to donate and make an immediate impact.
Share Blayne’s Story: Help us reach more people. Share Blayne’s story on social media with the hashtag #HopeForBlayne and encourage others to give.
Ask Your Friends: Ask 10 of your friends to donate $10. A small contribution from many can create a big change.
Fundraise with Us: Start your own fundraiser for Blayne through our peer-to-peer campaign platform. Invite your community to rally around this cause and spread awareness.

Hope for Blayne: Help Us Cure MPS1 Hurler Syndrome

By Kennedy Ladd Foundation

Hope for Blayne: Help Us Cure MPS1 Hurler Syndrome