💜 Hope for Finley Biddle

Finley Biddle is not just another name on a diagnosis chart. She is a daughter. A granddaughter. A warrior. A six-year-old with a laugh that lights up a room and a bravery that defies words.

Finley has MPS-1 Hurler Syndrome, a progressive, life-limiting genetic disorder that affects nearly every organ and system in her body. At just 9 months old, Finley endured chemotherapy and a bone marrow transplant in the fight for her life. Since then, her journey has included hospitalizations, surgeries, painful therapies, and weekly enzyme infusions—many of which her mom now administers at home.

She doesn’t complain. She faces each day with courage. But without a cure, MPS1 continues to threaten her future. Every day matters.

What is MPS1?

MPS-1 Hurler Syndrome is a rare and aggressive genetic disorder. It occurs when the body can’t break down certain sugar molecules, causing them to build up in the body and brain. This buildup leads to damage in the heart, bones, spine, hearing, vision, and cognitive function.

The impact is devastating. And it doesn’t stop.

Without intervention, MPS-1 can shorten a child’s life to under 10 years. Even with treatment, families live in constant uncertainty—battling for each step forward.

Finley’s Fight Isn’t Over

Finley is currently preparing for major spine and hip surgeries while undergoing weekly ERT (enzyme replacement therapy) to help her body fight the disease.

Her mom, Brooke, is a single parent who manages Finley’s care full-time:
• Administering medical infusions
• Coordinating with specialists across the country
• Traveling for out-of-state care (Minnesota, Delaware, and more)
• And doing everything possible to give her daughter a joyful childhood in the midst of hardship

They need your help now.

There is Hope

We are closer than ever to life-changing breakthroughs in research and treatment. But we can’t wait. Families like Finley’s need help right now.

Your donation will help cover:
✅ Fund travel and lodging assistance for families
✅ Support access to therapies, equipment, and critical medical care not fully covered by insurance
✅ Sustain families with practical support during extended hospital stays or recovery periods
✅ Grow our national community network—connecting MPS-1 families to each other and to hope
✅ Accelerate research partnerships and care innovations that improve quality of life for every child with MPS-1

Together, we can lift the burden for families facing the unimaginable and keep moving forward toward a cure.

This is a Cry for Help

MPS-1 is relentless. But so are we. And so is Finley.

Your donation can give her more time. More laughter. More milestones. It can help fund better treatment, support her family through crisis, and bring hope to everyone fighting for a cure.

Donate today and be part of Finley’s story. Every dollar makes a difference. Help us raise $1,000,000 to support MPS-1 research and care through The Kennedy Ladd Foundation.

How You Can Help

❤️ Donate Now
Every gift—no matter the size—helps a child like Finley hold onto more childhood.

📣 Share Finley’s Story
Use the hashtag #HopeForFinley #CureMPS1 to spread the word on social media and invite your community into the fight.

💬 Ask 10 Friends to Give $10
A small act multiplied can move mountains. Challenge your circle to give and share.

🚀 Join Finley’s Team: Fundraise With Us!
Finley needs a crew. And we’re calling on YOU to join her team.
Start your own Givebutter fundraiser under Finley’s banner and help raise critical funds and awareness. Rally your friends, family, and community to be part of the solution.

The more people who join, the louder our voice. The stronger our movement. And the closer we get to a cure.

Let’s Do This—for Finley 💜

Because every superhero needs a super team.
Because no child should fight this alone.
Because Finley is worth it.

Hope for Finley: Help Us Cure MPS-1 Hurler Syndrome

Help us CURE MPS-1

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