👶 Meet Lincoln
Born September 8, 2023, Lincoln Mizer is a happy, brave, and resilient toddler fighting a rare genetic disorder called MPS I (Hurler Syndrome). At just seven days old, his parents received a phone call that changed everything: a devastating diagnosis, a shortened life expectancy, and a journey no family is prepared for.

💔 A Parent’s Worst Fear
“We were grieving him while holding him,” said his mom, Emma. After a failed hearing screen and a shocking newborn screening result, Emma and JJ were thrown into a whirlwind of hospital visits, clinical trials, and unimaginable decisions.

🏥 The Battle Begins
Lincoln started weekly enzyme replacement therapy (ERT) at five weeks old. In December 2023, he received a bone marrow transplant—currently the only treatment that can slow the progression of this disease. He endured chemotherapy, ICU stays, intense pain, and even medication withdrawal… but he made it through.

🌟 Today: A Little Boy Full of Light
Now 19 months old, Lincoln is walking on his own and playing with joy. His therapy appointments are finally spaced out, and for the first time since his diagnosis, his family is catching their breath.

But the road ahead is long and your help is needed.

Why We Need You

Your donation will help:

🌈 Brings Hope to Newly Diagnosed Families
Through storytelling, social media, and outreach, we help families see that life with MPS I can still be filled with joy.

🤝 Builds Community and Connection
We connect MPS I families through retreats, online support, and direct one-on-one guidance to ensure no one walks this journey alone.

📱 Gives Practical Support
The foundation provides iPads, medical resources, and tools to help families navigate hospital stays, therapies, and communication challenges.

🎗️ Advocates for Better Care and Screening
We raise awareness, train providers, and push for improved newborn screening experiences and standards.

🔬 Funds Research for a Cure and Better Treatment Options
We invest in projects that aim to not only extend life but enhance the quality of life for children like Lincoln.

Every dollar gives Lincoln a brighter, healthier tomorrow.

🎧 Hear the Full Story

Emma shares Lincoln’s powerful story on the Rising Up Rare podcast, offering hope to other families walking this road.
🔗 Listen to the episode here

or Visit Lincoln.CureMPS1.org

🙌 How You Can Help

🧡 Donate whatever you can every dollar makes a difference
📲 Share this campaign with friends and family
Follow and connect with Emma on Instagram or Facebook

The Kennedy Ladd Foundation on Instagram or Facebook

💬 A Message From Emma

“Six months ago, I couldn’t talk about this without breaking down. Now I can because I know our story can help someone else. With awareness comes a cure. And with community, comes hope.”

Hope for Lincoln

A Journey of Courage, Resilience, and Love in the Face of MPS I (Hurler Syndrome)

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