Organized by Lichen Sclerosus Support Network
Event
Living Life to the Fullest In Spite of Lichen Sclerosus
Tuesday from 8:00 PM - 9:00 PM EST
Live Stream
This event will be livestreamed on our Givebutter page: https://givebutter.com/LSADay
The general ticket is for both events. Your ticket will list the time for the first event only, but it is good for the 10:30-12 PM EST and 8-9 PM EST events. You will receive reminder emails. You can watch the replay of the first event from 12-7:30 PM EST and the second from 9-3 AM EST, after which time the replays will be available on our YouTube channel. We'd love for you to subscribe at http://youtube.com/@lichensclerosussupportnetwork Click the link on your ticket to enter the events and watch the replays. If you need assistance or have questions please email [email protected] Scroll down for full event details.
Story
World Lichen Sclerosus Awareness Day is a day to bring attention. Attention to a condition that affects as many as 1 in 70 vulva owners worldwide. Despite this, it is still considered “rare”.
It takes an average of 5 to 15 years for a diagnosis due to misdiagnosis or it going undiagnosed. This is dangerous because Lichen Sclerosus is progressive and wreaks havoc on people’s bodies, minds, relationships, and souls. Learn more about LS on our World Lichen Sclerosus Awareness Day page.
Lichen Sclerosus Support Network’s dedication to shining a light on this condition has just begun. As we celebrate our second World Lichen Sclerosus Day as an organization, we are here to provide a safe and comforting community to all affected. Our programs and events give patients and practitioners the information they need to get people an earlier diagnosis.
We’ve seen how the proper Lichen Sclerocus education and support have brought people from despair and anxiety to peace and joy. We want you to hear it straight from them because you can be next.
You will hear from a reproductive-aged woman who thought her dreams of having another child were ruined after suffering two miscarriages and then being diagnosed with Lichen Sclerosus. And a post-menopausal woman who had all but given up on ever finding love again because LS and VIN had all but destroyed her vulva.
Hear how working with LSSN has completely changed their lives for the better.
This will be followed by a short presentation by Dr. Ulrike Dehaeck from the BC Centre for Vulvar Health in British Columbia, Canada, after which we will have about 40 minutes of Q&A.
Can’t make it to the earlier session? No worries. Join Dr. Jill Krapf from the Centers for Vulvovaginal Disorders in Washington, DC, later in the day as she answers your questions for an hour.
While this event is free, we rely on donors to help us continue providing quality education and support. If you feel inspired or found this event helpful, please donate. Every bit helps us continue teaching and supporting people through our website, blog, videos, podcast, virtual meetups, and private support group. It also funds our provider directory and allows us to create more events like this.
Scroll up and click the “Donate” button to make your donation now.
OR
If you’re in the market for quality vulva products, purchase from our World Lichen Sclerosus Awareness Day partner SweetSpot Labs.
Sweet Spot Labs is on a mission to elevate vulvar skincare and break the stigma around vulvas. For the second year in a row, they will donate all online proceeds from shop.sweetspotlabs.com on January 17, 2023, to LSSN in honor of World Lichen Sclerosus Awareness Day in their commitment to helping vulva owners become educated about their bodies.
In partnership, we have created the Lichen Sclerosus Bundle, a mix of SweetSpot Lab and LSSN products.
It is crucial for vulva owners with LS to not only care for their vulvas but check them at least once a month. We understand there are many reasons this can bring fear, shame, and anxiety. The Lichen Sclerosus Bundle strives to make things easier.
The Lichen Sclerosus Bundle includes:
We want to give you the tools you need to make vulva checks and caring for your vulva pleasurable and a form of self-care. Purchasing the Lichen Sclerosus Bundle separately will cost you $80 USD/113$ CAD.
Get your Lichen Sclerosus Bundle and set up your cart now. Then check out on January 17, so you not only help yourself but others with LS too.
Thank you!
